I was diagnosed with Keratosis Follicularis, a chronic genetic skin condition, when I was 7 years old; I first showed signs at 4. Living with my condition, consists of rash areas appearing on many areas throughout my body. It encompasses my body and is painful, allowing for it to be impossible to not think about and experience it. I document my skin in close up photographs filled with texture, as well as through other elements of installation; in order to explore my individual lived experience, one that is rather lonely as nobody I know also has.